{"id":1068,"date":"2014-09-25T15:35:08","date_gmt":"2014-09-25T15:35:08","guid":{"rendered":"http:\/\/blogs.iriss.org.uk\/keepingitpersonal\/?p=1068"},"modified":"2015-04-23T14:18:53","modified_gmt":"2015-04-23T14:18:53","slug":"4th-session","status":"publish","type":"post","link":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/2014\/09\/25\/4th-session\/","title":{"rendered":"Choosing ideas and developing plans"},"content":{"rendered":"
<\/a><\/p>\n So now it was time to identify the ideas we wanted to develop and create plans to make these ideas a reality. \u00a0We did this by working through this programme<\/a> and having these goals:<\/p>\n Music is a great connector. To get everybody talking, relaxed and to get to know each other just that bit little more we asked group members to talk in pairs about their favourite songs and repeated this three times.\u00a0People had great fun revealing why, for example, Eric Clapton’s ‘You Look wonderful Tonight’ was so special to them, or what it was about Queen that they loved \u00a0(as well as their experiences of seeing them live!). We used\u00a0spotify or YouTube for the whole\u00a0group to listen together.<\/p>\n This session\u00a0lasted beyond the time allocated in our programme. However, I decided to let it run as I thought it useful to let the group hammer out some of these issues. It seemed to help them really decide what were the most crucial things they wanted to focus on during the rest of the day. However, we then\u00a0had to adapt and re-jig the remainder of the programme.<\/p>\n The homework (as based around the idea that online resources for people with heart failure are not particularly good) led to a group perception that good information gets mixed in with the bad, and accurate with mis-information. The group also identified that:<\/p>\n When searching for different search terms people found:<\/p>\n Resources people identified as ‘good’ were:<\/p>\n Resources people identified as ‘not so good’ were:<\/p>\n From this\u00a0discussion we\u00a0identified that people considered heart failure not as a disease, but a response to something else. They believed that earlier diagnosis and increased availability of appropriate support could improve the experience for those affected. This became the key issue for this group.<\/p>\n Consequently, the group felt that GPs should\u00a0be the lynch pin for person-centred care. However, some of the group wondered whether GPs always fully explored patients’ medical history. They feared that without \u00a0this understanding there was a risk of misdiagnosis and inappropriate treatment. \u00a0Group members felt they had experienced reading\u00a0wrong information. For example, having fluid on your legs may lead you to a self-diagnosis of heart failure, but it could also be the result of another condition. There was also the possibility of misdiagnosis due to different approaches to testing.<\/p>\n This discussion identified that fear can be a barrier to people visiting their GP when they have symptoms. The group was clear that accurate information, a checklist even, was needed. However, the approach would need to\u00a0provide a positive message that if you\u00a0do\u00a0<\/em>have heart failure there are things that you can do. \u00a0And according to group members, that shouldn\u2019t automatically mean being advised to give up your job \u2013 which\u00a0can lead to depression.<\/p>\n For those with lived experience in the group, it was often only when they met a heart failure nurse that things began to fall into place. However, it was recognised that the heart failure nurses can only do so much and can be overstretched. Plus, their focus is not on prevention. By this point, things have advanced and opportunities may have been missed to prevent deterioration. Group members’ experiences of attending a cardiologist every year for 25 years, had left them feeling that there was little they could do for themselves that would make a difference. In hindsight, they believed this was not the case and that they had missed opportunities to keep themselves well. One group member’s \u00a0son, who had the same inherited condition, had the benefit of her hindsight and was keeping fit and taking\u00a0the right medicines.<\/p>\n We also discussed that health literacy can be a big problem. People felt there was a lack of consistency around receiving written information and that patients often\u00a0didn’t\u00a0\u00a0know the right questions to ask.<\/p>\n Is it all about better education?<\/p>\n <\/a><\/p>\n Group discussion summarised<\/p>\n In summary, three key themes emerged from this conversation:<\/p>\n This led the group to identify what was needed, namely…….<\/p>\n How do we support or challenge GPs \u2013 and maybe practice nurses too?<\/p>\n The group discussed that this is in the context of:<\/p>\n This part of the day was to explore the content and functionality of local information that was already available.\u00a0As we’d already\u00a0covered some of this ground during ‘homework feedback’ we focused our time on looking at some of the following sites – as possible inspiration for the work North Lanarkshire Council has undertaken\u00a0to do around improving local online information for people with heart failure.<\/p>\n We started out from the basis that by the end of today we wanted to agree ideas that we wanted to test. Ideally, a minimum of two and maximum of four, with responsibility for delivering them shared across the group.<\/p>\n The group were reminded:<\/p>\n <\/a><\/p>\n We also took some time to consider what we’d hope to achieve<\/a>\u00a0and our earlier potential improvement ideas<\/a>.\u00a0Interestingly, the discussions we had had earlier that morning had really shifted on the group’s\u00a0thinking – very much away from peer support groups for example, to focusing attention on achieving earlier diagnosis and raising awareness.<\/p>\n These are the\u00a0ideas the group came up with instead.<\/p>\n <\/a><\/p>\n We then asked the group to vote on their favourite. They were given four red dots each which they could allocate however the liked – so they could spread these among the three ideas or give them all to one.<\/p>\n <\/a><\/p>\n Voting on favourite improvement ideas<\/p>\n <\/p>\n The top three ideas were around:<\/p>\n <\/a><\/p>\n Top scoring improvement ideas<\/p>\n At this stage we split the group up into three smaller groups to create a plan for each of the ideas. We supported this by giving people a template<\/a>\u00a0to work through. Each group then\u00a0fed back to the whole group about their plans and invited comments, feedback, and asked for any help others may be able to provide. Here the three completed templates:<\/p>\n <\/a><\/p>\n <\/a><\/p>\n <\/a><\/p>\n The fourth idea (which we don’t have a photographed template for) is the improvement of North Lanarkshire Council’s online resources, working with individuals in the group to improve local information.<\/p>\n Last, but not least, we invited people to allocate themselves to a working group to make these plans a reality.\u00a0People were encouraged to be on more than one working group if they wished.<\/p>\n <\/p>\n For homework, we encouraged each group to be in touch with each other before the next session to take these plans forward. We felt\u00a0the next meeting should include:<\/p>\n All smiley faces (10 out of 10). \u00a0Sorry I didn’t get everyone into the picture<\/p>\n <\/a><\/p>\n What went well?<\/p>\n What didn\u2019t work so well?<\/p>\n What will you take away from the day?<\/p>\n So now it was time to identify the ideas we wanted to develop and create plans to make these ideas a reality. \u00a0We did this by working through this programme and having these goals: Revisit community mapping and effective communication Develop and\u00a0agree\u00a0improvement ideas to trial Agree homework and next steps Connecting up Music is a… Read More »Choosing ideas and developing plans<\/span><\/a><\/p>\n","protected":false},"author":61,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"","neve_meta_content_width":0,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":""},"categories":[10902],"tags":[],"_links":{"self":[{"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/posts\/1068"}],"collection":[{"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/users\/61"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/comments?post=1068"}],"version-history":[{"count":0,"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/posts\/1068\/revisions"}],"wp:attachment":[{"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/media?parent=1068"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/categories?post=1068"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.iriss.org.uk\/keepingitpersonal\/wp-json\/wp\/v2\/tags?post=1068"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}\n
Connecting up<\/h3>\n
Last session’s homework – feedback from group<\/h3>\n
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Revisiting community mapping<\/h3>\n
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Developing plans for what we want to pilot\/trial<\/h3>\n
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Next step – agreeing ideas to test and setting up working groups<\/h3>\n
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Homework and plan for next meeting<\/h3>\n
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Feedback and evaluation<\/strong><\/h3>\n
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